Any answer to this chronic fatigue?
Written by admin on February 8, 2009 – 8:48 am -
I think I have chronic fatigue syndrome. This has been going on for many years (following a car accident), but every year it gets worse. I am so disabled that I can barely get out of bed, and then I feel so sleepy I have to quickly take care of business and then back to bed to recoup. It's certainly not normal to sleep almost all day and night, and then to be tired the whole time I am awake and doing things. I NEVER awaken feeling refreshed. I do have sleep apnea but I use the CPAP machine every night. So something else is causing this? I am not depressed, I have a very optimsitic outlook on Life. I do suffer chronic pain mostly from Fibromyalgia and Myofascial Pain Snydrome. And I can't exercise, my lungs have a disease that makes it very hard for me to breath so I'm alwasy SOB. I also have a very fast heart beat with no known cause. I think my heart is normal. My thyroid tested normal too, at least on the blood test. Is there anything that can make me not so sleepy? Even the Provigil barely helps (it's a drug to stimulate me). Sometimes I feel like I can't function at all, and go into a deep sleep. Could this be environmental? Allergies? And most of all, what will reverse this condition before it does affect my heart from lack of exercise? I'm really worried. 44 years old. Non smoker, don't drink. Will a homeopathic doctor help? powered by Yahoo Answers
If this is worrying you, just download this page, and take it to your doctor, and give it to them. Or get a second opinion from another doctor. Maybe a specialist.
If you are going to get a second opinion, from a homeopathic doctor, make sure they are registered, and are a general practitioner,or specialist, with an interest in homeopathy medicine.
Only a trained professional can give you advice. Also let everyone know, that this is worrying you, by talking about your fears with the doctors/specialists that you consult. Talk about the fears you have mentioned above. Download the page and take it with you.
Posted in fibromyalgia sleep apnea | 8 Comments »
Muscular/skeletal problems, please advise!?
Written by admin on February 6, 2009 – 6:24 am -
I was born with JRA and it progressed as I got older. When I was 12 I was permenantly in a wheelchair. But when I was 18, after my DPTP imunization, I presented as though I had Polio. I didn't, and every year I get worse. I told her to ask her rheumatologist if he had ever heard of a relationship of RA to allergy, and he said yes, there were foods that seemed to make it worse. Then I asked her to find a doctor who knew about clinical ecology, and to be tested for allergies, which she did, and then called me. She said "No wonder my hands were so sore and I kept them under running water in your sink, (warm or cold?)" Why not Google Theron Randolph, and see of you can find one of his books, "An Alternative Approach To Allergies". I did google "juvenile rheumatoid arthritis, allergies", and found the web site below, and I'm including a book mentioned in this article about Heidi, who had JVD. You'll find her story interesting reading. "I was given the book Is This Your Child by Doris Rapp. Dr. Mercola began testing Heidi for allergies and found she was allergic to all types of mold, formaldehyde, milk, wheat, corn, beans, peanuts and tomatoes. The connection between what she ate and how she felt was amazing. Corn products produced excruciating pain. We discovered many food products have corn hidden in their ingredients…." http://www.rheumatic.org/heidi.htm is the site, and Dr. Doris Rapp has other books on allergy also. I hope this information is able to give you a much better life to look forward to. May God bless you. powered by Yahoo Answers
My large muscle groups (hips, thights, shoulders, back, abdomen) do not respond well, and have very restrictive movement, weakness, and pain. My muscles and joints cannot support me. I am in constant pain despite fentanyl.
I have had a muscle biopsy for MD (neg.), evoke potentials for MS (neg.), and other many tests, none conclusive. I am soon to go in for another round of these tests, since it's been 10 years. I have had many diagnoses from ME, CFS, fibromyalgia, etc. But none of these have proved true due to presentation. I also am always exhasted, and have sleep apnea that does not respond to CPAP.
I am asking anyone to give me some hint as to what might be wrong. I am desperate to know. If you want more info, please email me.
I do have maintenance therapy to keep my range of movement (had it since I was little). Any more intense PT actually makes me worse in the long run. Some of the tests are by specialist, some by family doc. They think there may be something wrong with how my brain talks to my body. But no disease name.
This may sound a little crazy to you, but let me tell you what happened with my mother. She had what the doctor called a sudden, severe attack of rheumatoid arthritis, and was in a nursing home but eventually was able to go home, and had a very good doctor, but had lots of pain and things she couldn't do. Finally she decided to come from the west coast to Texas for a visit.
While she was here she had corn on the cob, corn bread, deep fried fish (dipped in corn meal to fry), and cream style corn, and when the testing showed allergy to corn and she left it alone, the pain went away. She had not been able to raise her arms up high at all, but can now put them straight up over her ears, also eliminating the things she tested allergic to. She was allergic to corn, beef, garbanzo beans (!) but that included peas, beans, peanuts, and when she stopped eating the things on the list, she got enough better that her doctor was arranging to have new joints for her fingers.
But her age and cancer canceled that plan.
Posted in fibromyalgia sleep apnea | 2 Comments »
Should I be Disabled ?
Written by admin on February 4, 2009 – 5:09 am -
Ok , powered by Yahoo Answers
I have been fighting for disability for years ..After a mental breakdown 5 years ago ,I have not been able to do my work anymore .I now have issues with severe depression ,anxiety , multiple moods disorder , severe sleep apnea , diabetes , chronic pain , total body pain ,AKA Fibromyalgia ..I am lucky if i have one good day a week where i am not plagued with fears of going outside or severe pain ..Which gets worse with everything I do ..
After 4 years i lost my first disability case ..And now the second one I started last year , just came back denied ..Worst thing ,after the end of december ,I am told , I am no longer qualified for disabilty..I am an American Citizen Born and Raised ..Should I be qualified for disability ?
I don’t quality for disability either and I have a spinal cord injury. So I keep on working. Not easy. Not fun. Not fair. But that is the way life is sometimes. We do what we gotta do to get by.
Posted in fibromyalgia sleep apnea | 13 Comments »
Sarcoidosis with Pulmonary Hypertension anyone??
Written by admin on February 2, 2009 – 7:36 am -
I am a 34 year old female with this condition & everything that my doctor has tried has failed in getting it under control. Currently I am on oxygen 24/7 and I have a CPAP machine with oxygen at night due to sleep apnea. Unfortunately, I also have seizures, fibromyalgia, rheumatiod arthritis, lupus, depression, panic/anxiety disorder, I also have 4 spots on the front of my brain which my doctor does not know what it is. I know that sarcoids can spread to other organs but doctor says that it generally stays in place?? However, I have been having vision loss in my right eye, my pcp checked my eyes and I could only read one letter on the 2nd line. Can sarcoids be affecting my eyes now. I am scared. My lung doctor has dismissed me as a patient due to the this statement: I don't know if I can help you, more than likely you have had this disease for over 10 years and the other doctors just let it go. So in other words he didn't want to be stuck in the middle. Waiting on disability court date Canajoh, my husband & I feel the same way. We are questioning the sarcoids. I have already had a 2nd opinion which came back inconclusive for sarcoids but they still said it was sarcoids. This is my health they are playing with. By the way, my doctor is making arrangements for me to go to the Barnes-Jewish Hospital in St. Louis, MO. but they have been booked up. Sad to say. Thanks to all for your support. i think they should have tests done to you to see where the root of all problems originates and try to fix that and slowly working outwards to other problem areas as well. the most important thing is to find out where it all originated and treat that. because im guessing the symptoms you're getting right now are side effects of that "root problem" powered by Yahoo Answers
My apologies for not listing my meds.
Tylox for pain
Demerol for pain
Duragesic patch for pain
Keppra for seizures
Flexiril for Fibromyalgia
Zanaflex for Fibromyalgia
Prednisone for Sarcoidosis & Lupus
Phenegran for nausea
Celexa for Depression
xanax for panic/anxiety disorder
methotrexate for Sarcoidosis & Lupus
CPAP w/oxygen for sleep apnea
oxygen for Sarcoidosis & P. Hypertention
And I am currently on a heart & diabetes diet. And I don't have diabetes (unless they just have told me yet) "sigh"
Carla, thanks for all the websites, they will be helpful & I will email you because I have questions that you may be able to help me with.
whoa! reading your question, i can almost feel the pain — that's tough. all i know is the reason why you're having pulmonary hypertension is because you're having lung problems that's why you're on oxygen and cpap. but the rest? not really in my area of expertise but looks like your problems stems from neuromuscular disorders. and now they found spots in your brain to which your doctor would not do anything? try seeking second opinion — to tell you the truth, if i were the doctor and you have all of these conditions — it IS tough and i wouldn't know where to start.
Posted in fibromyalgia sleep apnea | 7 Comments »